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April 26 2024 11.18pm

Charlie Gard

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View the_mcanuff_stuff's Profile the_mcanuff_stuff Flag Caterham 11 Jul 17 5.40pm Send a Private Message to the_mcanuff_stuff Add the_mcanuff_stuff as a friend

Even with this experimental treatment (and assuming it's a success), the poor boy will be left with irreversible brain damage and unable to live unassisted, without medical means. His quality of life will still be zero.

I'm a parent and also the uncle to a disabled boy, but I'm sorry to say, in this case they should let him die peacefully and with dignity.

And also, I can 100% understand the parent's stance and why they can't rationally distance themselves from the decision. Every parents views change when it's "your own". It's a perfectly natural bias. They are in denial about the severity of their son's condition, as is often the case with parents of disabled children, in my limited experience.

 

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View Kermit8's Profile Kermit8 Flag Hevon 11 Jul 17 7.30pm Send a Private Message to Kermit8 Add Kermit8 as a friend

Originally posted by bubble wrap

Would be the easiest thing to do. But if it is going to cause Charlie further suffering its not the right thing to do.

Agreed. Was basing it on him not suffering anymore than he is already and if there is strong medical belief he would be even worse off then it's correct that the parents have the decisions made for them as tough as that is.

 


Big chest and massive boobs

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View Lyons550's Profile Lyons550 Flag Shirley 12 Jul 17 9.28am Send a Private Message to Lyons550 Add Lyons550 as a friend

Well done everyone for contributing in a rational and reasoned manner to a potentially incendiary subject...both sides of the debate having their say and getting their views across without the usual slanging matches erupting.

Some great and valid points from both sides

Just how HOL should be

 


The Voice of Reason In An Otherwise Mediocre World

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View HeathMan's Profile HeathMan Flag Purley 12 Jul 17 9.54am Send a Private Message to HeathMan Holmesdale Online Elite Member Add HeathMan as a friend

Have shared all your contributions with my wife. Please accept thanks from both of us.

 

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View becky's Profile becky Flag over the moon 12 Jul 17 11.53am Send a Private Message to becky Holmesdale Online Elite Member Add becky as a friend

Originally posted by Michaelawt85

My children are older than charlie gard but if I asked them what they want replies would range from sweets to a certain toy to a trip out somewhere or maybe a friend round for a sleepover. This child cannot communicate in any way shape or form. Is only 10 months old so wouldn't form much of a rational response anyway and even if he was older no one would be having these types of conversations about life or death with a child. More crucially and very sadly he is completely unable now or in the future of doing any of the things a completely healthy or even another child with some disabilities can do. I am only starting to skirt round these kind of topics with my own mother and she's 66 and I am 32!! She has health problems and I am the next of kin and should the worst happen it will be on my shoulders to make the call. You have to think to yourself would the other person want to live like this. I am pretty sure no one would to be honest

Edited by Michaelawt85 (11 Jul 2017 4.58pm)

No experience with children, but I had to make that call with my mother. The fact that she had made her wishes clear to me still didn't stop it being a difficult thing to do, but sometimes you just have to love them enough to let them go.

 


A stairway to Heaven and a Highway to Hell give some indication of expected traffic numbers

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jamiemartin721 Flag Reading 12 Jul 17 12.22pm

Sometimes in life, maybe often, I think you have to decide not on what you want to do / or happen, but what is the most difficult thing for you to do or outcome you least desire - And I think its definitely true in very hard decisions - that usually the best solution is the most difficult decision to make.

When my mother was diagnosed with cancer, I think the choice of my family was always to go with the easy decision, and then rationalise that decision as the best outcome (notably that she wasn't suffering because of the morphine, or that she wasn't concious).

I wanted to help her in the end, there was a point at which it was clear that there was no coming back, getting better, but the rest of the family were against it. Even in the end they were rationalising their decision, as she effectively drowned in her own fluid, until her heart gave out after five slow days.

Easy decision, is to watch suffering, hope and keep telling yourself its the best.

 


"One Nation Under God, has turned into One Nation Under the Influence of One Drug"
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View Michaelawt85's Profile Michaelawt85 Flag Bexley 12 Jul 17 2.49pm Send a Private Message to Michaelawt85 Add Michaelawt85 as a friend

Both Becky and Jamies posts are very sad and difficult to read. Probably because most of us know this is a scenario many of have either faced or will do in the future.

I think sometimes people feel so guilty at having to make the hard choice they choose to wait , possibly hoping the decision will be out of their hands at some stage and they won't have to live with the guilt . It's a difficult thing to bring up isn't it. My mum has got quite defensive about it at times. Thinks I am wishing her dead or something but I think having 'that' conversation and having some thought as to the wishes of the other person , although doesn't make it hurt any less , it can help you later to be confident you are doing something they would ultimately be at peace with you about. Xx

 


When I was a young girl my Mother said to me.. You listen here kid you're CPFC

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View Y Ddraig Goch's Profile Y Ddraig Goch Flag In The Crowd 12 Jul 17 5.25pm Send a Private Message to Y Ddraig Goch Add Y Ddraig Goch as a friend

An illustration of how difficult it can be the other way too

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the dignified don't even enter in the game

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jamiemartin721 Flag Reading 12 Jul 17 5.38pm

Originally posted by Y Ddraig Goch

An illustration of how difficult it can be the other way too

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How cruel we as a society are, that we would allow people to be starved or suffocated to death, by turning off machines, but not provide a means of death that is painless such as an overdose of diamorphine or barbiturate: that we as a society would see our own moral senses as being more valid than the suffering an individual is going through as their body decays or collapses around them, whilst their mind goes on.


 


"One Nation Under God, has turned into One Nation Under the Influence of One Drug"
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wordup Flag 12 Jul 17 10.03pm

Originally posted by Y Ddraig Goch

An illustration of how difficult it can be the other way too

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This can be such a complex issue with people fighting for what they think is the best for their child. That clip is heart breaking. I can't imagine how hard it must be to care for your child day in, day out but at the same time feel that they would be better off dead. How frustrating it must be too, to have that decision taken out of your hands.

 

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View Michaelawt85's Profile Michaelawt85 Flag Bexley 13 Jul 17 11.26am Send a Private Message to Michaelawt85 Add Michaelawt85 as a friend

Parents back in court today waiting for a decision from the judge as they seek to overrule the last court judgement saying life support should be withdrawn.

Personally I envisage the court upholding the last judgement and this continuing. How can the doctors physically withdraw life support with two parents in attendance who would understandably be hysterical and are completely anti the decision. I can only see more of a stand off. More legal challenges to buy the parents time and this child remaining in this state until he passes away of his own accord. What happens if he doesn't? Mind boggling scenario

 


When I was a young girl my Mother said to me.. You listen here kid you're CPFC

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View dannyh's Profile dannyh Flag wherever I lay my hat....... 13 Jul 17 11.51am Send a Private Message to dannyh Add dannyh as a friend

Turning off his life support even with a 0.01 % chance of a cure is tantamount to murder. quality of any future life shouldn't even be on the table for discussion. What should we have done with Stephen Hawking, when he became paraplegic? roll him off Beachy Head ? of course not.

While there is a chance, no matter how slim his parents have every right to fight for the childs right to live.

I almost hate myself for thinking this, but I bet my best boll0ck this wouldn't even be in the papers if the Gards were one of the vogue minority couples, gay, lesbian, etc etc.

It stinks.

 


"It's not the bullet that's got my name on it that concerns me; it's all them other ones flyin' around marked 'To Whom It May Concern.'"

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